So Much More: My Copy.....

Wednesday, January 6, 2010

My Copy.....

I received a copy of the radiologist report and the MRI disc in the mail today (1-6-10). Since I'm not a doctor, I can only guess what his assessment will be, but from what the report says....... L4-L5 is still a mess with some nerve involvement. (L5-S1 "demonstrating complete loss of disc height and hydration, with endplate sclerosis and bulging). There also seems to be some new bulging at L2-3 which was not present in '06.

????? Your guess is as good as mine, but at least it shows something so I know I'm not losing my mind..... I seem to always question that possibility! :)

Now I just have to wait and see what the dr. says when he gets the report..... I'm still maintaining hope that the simple x-stop will take care of it........ I should hear from the dr. by Friday or next week and we'll go from there......

Stay tuned*******

2 comments:

Beth Niquette said...: Never underestimate the power of God. I will be praying for you, my sweet friend!

God is good and He is with you.; January 6, 2010 at 9:34 PM
Nina said...: My thoughts and prayers are with you and your doctors. I pray there will be an answer for you soon. Blessings. Love and Light, Nina P; January 19, 2010 at 5:56 PM

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Tarzan?......why tarzan?

As noted in my profile, I was diagnosed with follicular non hodgkins lymphoma on November 30th, 2007. We were on a trip to the grand canyon area when I first became sick and noticed a lump on the side of my neck. Following an exam, many tests, and a surgical biopsy, I learned that for now I have a very slow growing lymphoma and over the years they have learned that immediate treatment will not change the outcome.

This is very different from when my Mother died of it in 1976. At the time hers was discovered in 1971, they saturated her with radiation over a 5 year period of time. Since then they now know that since it is not curable anyway, they would rather keep the patient off of treatment as long as possible. The modern terminology for this is "watch and wait".

At the time I have no further symptoms that I can not live with. I am low on energy, but part of that can be contributed to just age! Though I have some damaged veins in my neck due to the surgery, the nodes in that area come and go and have not caused any concern yet.

Watch and wait is NOT an easy way to live, we know the lymphoma will flare up again some day, so that tends to keep one aware of any changes. Of course I worry and of course I have problems with stress. However; since I look to my oncologist for guidance and rely on his wisdom, I am following his suggestion of pretending to be like Tarzan....... Tarzan in the movies who, while swinging through the jungle, always had a vine to grab as he was going from tree to tree. My oncologist has assured me over and over again that the vine would be there when I need it. As I grab one vine, another will be growing for me as I move through the jungle.

He explained to me that research and improvements in treatments are growing at a rate that is nearly faster than the growth of my cancer.

The message for all FNHL cancer patients, is to become "tarzan" like..... go ahead and climb that tree, stay alert, live life, and when you to need to reach out for that vine it WILL be there! As will the next one, and the next one, and the next one. Go ahead and swing through life and do it with confidence..... As with everything, there is so much more to the story, and so much more to life than cancer.

So Much More

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Wednesday, January 6, 2010

My Copy.....

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