So Much More: Appointment Changed

Friday, September 19, 2008

Appointment Changed

The back doctor's office called this morning and my appointment has been moved up to Oct. 13th because the dr. has to go to some sort of conference on the 16th..... Now I will have to face all this 3 days sooner than I thought I would. Well, I guess the good thing is that I have less time to worry about it, but right now that's not making me any happier. I think I will go stick my head in the sand for awhile. I'm not ready to take on any more thoughts about it right at the moment.

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Tarzan?......why tarzan?

As noted in my profile, I was diagnosed with follicular non hodgkins lymphoma on November 30th, 2007. We were on a trip to the grand canyon area when I first became sick and noticed a lump on the side of my neck. Following an exam, many tests, and a surgical biopsy, I learned that for now I have a very slow growing lymphoma and over the years they have learned that immediate treatment will not change the outcome.

This is very different from when my Mother died of it in 1976. At the time hers was discovered in 1971, they saturated her with radiation over a 5 year period of time. Since then they now know that since it is not curable anyway, they would rather keep the patient off of treatment as long as possible. The modern terminology for this is "watch and wait".

At the time I have no further symptoms that I can not live with. I am low on energy, but part of that can be contributed to just age! Though I have some damaged veins in my neck due to the surgery, the nodes in that area come and go and have not caused any concern yet.

Watch and wait is NOT an easy way to live, we know the lymphoma will flare up again some day, so that tends to keep one aware of any changes. Of course I worry and of course I have problems with stress. However; since I look to my oncologist for guidance and rely on his wisdom, I am following his suggestion of pretending to be like Tarzan....... Tarzan in the movies who, while swinging through the jungle, always had a vine to grab as he was going from tree to tree. My oncologist has assured me over and over again that the vine would be there when I need it. As I grab one vine, another will be growing for me as I move through the jungle.

He explained to me that research and improvements in treatments are growing at a rate that is nearly faster than the growth of my cancer.

The message for all FNHL cancer patients, is to become "tarzan" like..... go ahead and climb that tree, stay alert, live life, and when you to need to reach out for that vine it WILL be there! As will the next one, and the next one, and the next one. Go ahead and swing through life and do it with confidence..... As with everything, there is so much more to the story, and so much more to life than cancer.

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Friday, September 19, 2008

Appointment Changed

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Tarzan?......why tarzan?

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